Wow, I am so behind, two holidays have already come and gone since my last post! I’ll start catching up with Thanksgiving.
For Thanksgiving week our original plans were to meet up with some friends in Orlando for a week of Disney fun. On the morning we were to leave, I woke up feeling dizzy and could barely walk because the room was spinning so badly. I worked my way into the shower only to make things worse. As soon as the water hit me, I started throwing up and couldn’t stop. Rob took me to the doctor’s office and I’m still thinking the doctor can fix me and we can make our flight in 3 hours. Boy was I wrong!
His diagnosis was an inner ear infection and he gave me a shot for the nausea, antibiotics and steroids. He told me there was no way I could fly with my ear infection. Rob broke the news to Liam and he was so sweet about it and was just worried about me and not missing the trip. Best kid ever, more worried about his Momma than missing Disney!
I was out of it for the next few days. My ear was not feeling any better by the weekend so I went to an urgent care center. The doctor there confirmed that I had an inner ear infection and just needed to give the meds time to work.
On Monday, I returned to my regular doctor and told him it had been a week and my ear wasn’t any better and I had finished all my meds. He gave me different steroids to take and told me it would take time. I just knew something wasn’t right because I have had ear infections before and this one wasn’t the same.
I scheduled an appointment with an ENT (Ear, Nose, Throat) doctor and couldn’t get an appointment for 2 weeks. Luckily, a week later, the ENT office called and said they had a cancellation. The doctor examined me and told me that I did not have an inner ear infection. His diagnosis was sudden sensorineural hearing loss. What? He said that it was unfortunate that I hadn’t been diagnosed sooner because the best chance of recovering my hearing was within the first 72 hours after it occurred. I was now 14 days out and he said he wouldn’t even treat me if I was 21 days out. He also said that it is common for general doctors to misdiagnose this as an inner ear infection because it is not that common and has all the same symptoms.
Over the next week, I did 3 treatments of cortisone injections thru my eardrum into the middle ear. Yeah, it was as pleasant as it sounds. None of the treatments had any effect on my hearing and I had to persuade the doctor to even do the 3rd treatment. I figured I had nothing to lose doing all 3 treatments. In the end, the treatments didn’t help but I would’ve always wondered had I not done the 3rd one.
He is not certain what caused it, my blood tests and MRI did not show anything, but his best guess is that it was some sort of viral infection that I had that attacked my ear. I now have only about 10-20% of hearing in my left ear and constantly hear a high-pitched hissing in that ear that is called tinnitus.
A few days before Christmas they made a mold of my ear for a hearing aid fitting. He is hoping that the TransEar type hearing aid will allow me to regain my ability to distinguish sound direction again. It should be ready for me to test sometime after the new year.
I still can’t believe this happened and I hold out hope that my hearing will return on its own one day. In the meantime, I hope that reading this post will help someone else if it happens to them. If you ever wake up dizzy, throwing up and have problems with your ear, RUSH to the emergency room and request an ENT. The faster they start the treatments, the better chance you have of regaining your hearing. If anyone reading this has had sudden sensorineural hearing loss (SSD), I would love to hear about year experience and outcome.
Up next…Christmas post!